Ethan Joshua Schwartz, 12

Ethan Joshua Schwartz, 12, of Gilbertsville, passed away Friday September 9, 2022 at Sanford Children’s Hospital in Sioux Falls, South Dakota.

Born in Bryn Mawr, he was the son of Eric J. and Martrese (Young) Schwartz.

Ethan was pure magic. He had the most amazing smile and contagious laugh. He had the most beautiful and expressive brown eyes and rock star hair. Ethan’s legacy is that he loved and lived life to its fullest. While he had suffering, he was not a suffering child. He decided to be happy, and he was. He was full of fire and attitude that served him very well.

Ethan and his family had a trip of a lifetime together visiting the national parks and Morgan’s Wonderland in San Antonio, Texas. His enjoyment was all over his face at every turn. His favorite spot was Glacier National Park in Montana. He loved the beautiful vistas and the wind in his hair at the top of Logan’s Pass. He was pure happiness as he explored the Trail of the Cedars just like everyone else. He was filled with awe and wonder. Ethan was a true nature lover and delighted in exploring the world around him.

His favorite activity was to walk to the end of the neighborhood with his mom and count the cars. Ethan also loved visiting the Barn at Springbrook Farm where every session started with his best buddy, Sugar the Donkey, and ended cuddling the bunnies. Ethan was pure joy riding on the swing on his back porch, floating in the pool or soaking in the bathtub. He loved gazing at stars around the firepit, riding the waves in his beach wheelchair, or bumping on the slats of the boardwalk as he anxiously awaited a game of skeeball or getting a treat. Cotton candy and chocolate & peanut butter ice cream were his favorites.

Ethan was the heart of his family. He loved to cuddle on the couch with his Mom, Dad, Sister and cats, Cocoa and Snow. He loved to hang out for movie and game nights. Ethan absolutely loved Star Wars and Marvel. He would burst with excitement when watching a new episode of The Mandalorian. He loved dressing up on May the 4th and Halloween. He had also really gotten into Harry Potter. He absolutely loved music and recently discovered the Beatles.

Ethan was nonverbal but extremely social. He loved school with his friends. He was the class weatherman and was always the first to compliment his friends with “you did great” or checking in “are you having a good day?” or “how are you feeling? using his eyegaze communicator. He loved to tell jokes and perform in the holiday and talent shows. Ethan was so happy at school, and he shared that joy with his friends, therapists, teachers and aides at CADES. While he was only part of the HMS School community for a short time, he was so excited to start the school year in the fall.

Ethan had a large extended family of caregivers. Tammy Koble and Nancy Lescalatte were his most devoted nurses and are forever family. Through the years, there have been many nurses that have loved Ethan like their own. The Speech, Occupational and Physical therapists from Limerick Theraplay encouraged him into his full potential. He also had devoted doctors and staff at Nemours Children’s Hospital in Wilmington that advocated for Ethan to live his most full life.

Surviving along with his parents are his sister Julianna “Jules” Schwartz; maternal grandparents Martrese and John Young; paternal grandparents Andrea and Marc Schwartz; and numerous aunts, uncles, and cousins.

Funeral services will be held Wednesday September 21, 2022 at 6:30 PM at Catagnus Funeral Home & Cremation Center, Ltd., 329 N. Lewis Rd., Royersford, PA 19468. Interment will be private. Visitation will be held Wednesday from 4:00-6:15 PM at the funeral home.

In lieu of flowers, donations can be made to any of the following organizations in Ethan's name:

The Barn at Spring Brook Farm. Ethan loved animals. https://www.springbrook-farm.o...; There is a "Donate Now button in the top right corner.

Ocean City Surf Chair Program. Ethan loved the beach, and Ocean City, NJ offered beach-accessible wheelchairs for free daily use. Personal checks in Ethan’s name can be sent to:

City of Ocean City (Surf Chair Program)

861 Asbury Ave

Ocean City, NJ 08226

Happy 2 be Home. This is the organization that helped remodel his home after the anoxic brain injury to move his bedroom to the first floor and allow space for his wheelchair.; There is a "Donate" button in the top right corner.

Designing 4 Hope. This is the organization that decorated Ethan's room (and Jules's room) after the remodel to make it feel like home.; There is a "Donate" button in the top right corner.

Add My Condolences

My heart and hugs go out to the family today. Ethan is a true superhero. Each post you could feel the love around him empowering his journey. I’m grateful to have spoken to him and seen his character. Thank you for sharing his journey ??

~ Delco Spider-Man
9/20/2022 2:39:02 PM

While you probably don't remember me, I remember Ethan and have thought of him many times over the past 9 years since we met. Im so genuinely sorry for your wonderful family. Ethan will live on in memory forever.

~ Jessica Forsythe Douglassville, PA
9/18/2022 10:05:56 PM

I had just started to get to know Ethan as a student in my class. I loved his smile when he would sign on for our sessions. I bought a little Grogu to join us in class so Ethan will always be there with us too.

~ Teresa Giardina Philadelphia, PA
9/16/2022 4:03:49 PM

Ethan, you were such a pleasure to meet and work with at CADES back in 2018-2019. I remember how you used to crack all of us up with your jokes and tricks. Sending all of my love to your family and to you, I know you'll be looking out for them.??

~ Ingrid Peura Wallingford, PA
9/16/2022 2:37:51 PM

I am so very sorry for your loss. I never had the pleasure of meeting Ethan, but was lucky enough to follow his journey via Facebook. He was so blessed with loving family and friends and was always smiling. You and your family are in my thoughts and prayers.

~ Donelle Rzonca
9/16/2022 12:45:25 PM

I had the pleasure of meeting Ethan briefly when he was a preschooler. Rooting for him from a distance since then, I've always admired his grit, determination, and his ability to beat the odds. My sincere condolences to his family and all who knew and loved him.

~ Steph K. Phoenixville, PA
9/16/2022 11:56:31 AM

To quote John Lennon, When I was 5 years old, my mother always told me that happiness was the key to life. When I went to school, they asked me what I wanted to be when I grew up. I wrote down 'happy'. They told me I didn't understand the assignment, and I told them they didn't understand life." This totally epitomized our grandson Ethan. Mom, Dad and his “Nana” made him the happiest. Star Wars, school and ice cream made him happy. Soft animals and the beach made Ethan happy. Grandparents, cousins, aunts, uncles and friends made Ethan happy. It will make us—Grampa and Grandy happy to keep Ethan in our hearts forever and ever.

~ Andrea/Marc Schwartz
9/15/2022 10:01:36 PM

What a special guy! My heart is truly with you and your family, Martrese. So much love and comfort to you all. ??????

~ Jennifer McGrath Conshohocken, PA
9/15/2022 8:08:59 PM

I did not know the family personally, but Tammy spoke of him fondly. I began to love Ethan even though I never met him. I’m so sorry to hear about your loss but I know he’s watching over everyone who devoted endless love to him.

~ Amy Siekierka
9/15/2022 7:40:24 PM

This tribute to Ethan is so special. He was blessed to have such dedicated and supportive family in his life. Thinking of you all. Ilene

~ Ilene Decker Reston, VA
9/15/2022 7:08:17 PM

What a moving and beautiful tribute to this sweet boy. He lived life like you should. We should all take lessons from him and live life to the fullest. My thoughts and prayers go out to his friends and family. You were all very lucky to be a part of his life. God Bless.

~ Sarah Olson Saint Joseph, IL
9/15/2022 6:59:40 PM

What a wonderful tribute to Ethan! Praying for peace and comfort for your family!

~ Nicole Kline Gilbertsville, PA
9/15/2022 6:14:14 PM

I am truly sorry for your loss ?? May you have many wonderful memories to fill your heart and soul ??

~ Jennifer Connor Morton, PA
9/15/2022 5:53:40 PM

What a beautiful tribute to Ethan. He certainly loved life and thrived with the quality of life that you provided for him. Ethan will always hold a piece of our heart at Cades.

~ Kathy Hushen Springfield, PA
9/15/2022 4:51:49 PM

I am so sorry. My sincerest sympathies to Juliana, Martrese and Eric. The entire family is in my continual prayers

~ Lewis Branin
9/15/2022 4:11:09 PM

Ethan will forever be in the hearts of all who knew him. May he be at peace and may you find comfort in your many memories with him. Praying for all of you.

~ Michele Hain
9/15/2022 4:11:02 PM

My late wife Judy Lynn, June 20, 1963, one car accident. Coma 2 months, broken neck, 3/4 th of brain, gone. I can truly appreciate your young man's situation. Praying he is running on the streets of Gold. His smile EVEN BRIGHTER!

~ Art Mauger Phoenixville, PA
9/15/2022 3:57:18 PM